I Ran Out Of Oxygen! + My Medication for Pulmonary Hypertension (part 2)

#pulmonaryhypertension #raredisease #chronicillness

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I Ran Out Of Oxygen! + My Medication for Pulmonary Hypertension
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Thank you so much for tuning in! I was diagnosed with severe Pulmonary Hypertension 6 years ago, after having been misdiagnosed for 5 years. When I was finally diagnosed, I was in heart failure (the right side of my heart was three times its normal size), I was told that I may not have much time left to live, that I may never leave the hospital again and that if I did, I would have to be on oxygen for the rest of my life! (Not the best news!)

I had just booked a tour and was about to release my new album when all hell broke loose. Here I am, 6 years later feeling a zillion times better. I am so incredibly grateful to be alive! It is my hope that some of the things I've done may be of value to YOU.

For the past 6 years, I have utilized five key elements that I believe have played a huge role in my improvement. They are Nutritional Lifestyle, Exercise, Mindset, Creative expression and Quality time with Family and friends. I believe that these key elements have not only allowed for the medication to work when I was told that it most likely wouldn’t (because my Pulmonary Hypertension was so severe- pulmonary pressures were at 180) but that they have also allowed me to drastically reduce my meds. I am currently on very low doses of medication and I really don't experience any side effects.

I get so many emails from people asking about nutrition, exercise, how to stay positive when things get difficult...basically wanting to find out what I’m doing.

As I always say, I have no idea what could happen to me tomorrow, but I do know that today, I’m so much better than I was.

It's my sincere hope that some of the things that have helped me may be of help to you, too.

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